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SIBLINGS OF DISABLED CHILDREN MORE SELF-CONTROLLED, COOPERATIVE THAN PEERS, SAYS
BYU STUDY
 Brothers and sisters of children with disabilities demonstrate greater social
skills than siblings of children without disabilities, according to a new study
by Brigham Young University researchers.
The news that siblings of children with disabilities are more cooperative and
exhibit more self-control than their peers is helping change the perception
that families with a child with a disability are seriously disadvantaged, said
Barbara Mandleco, associate professor of nursing and lead researcher on the
study.
“It’s not all negative. Yes, these families have challenges, but in many
respects they are doing really well,” said Mandleco. “That’s the positive
message of our work.”
Published in the current issue of the “Journal of Family Nursing,” the study
reports the perceptions of 78 sets of parents, half of whom had a child with a
cognitive, developmental or compound disability, and the elementary school
teachers of their non-disabled siblings. Parents completed questionnaires on
family functioning, which asked about marital and family conflict, cohesion and
whether or not the family viewed itself as capable and responsible for solving
its own problems.
Teachers were asked questions about how these siblings interacted with other
children -- did they control their temper in conflict situations; did they
invite others to join in activities unprompted; did they get along with people
who are different than themselves?
“The teachers provided an objective viewpoint of the child’s everyday behavior,”
said Susanne Frost Olsen, a BYU associate professor of marriage, family and
human development. “We took the parent data, along with the teacher data and
ran statistical analyses to see if there were differences between families who
were raising a child with a disability and those who were not.”
The researchers found no significant differences in problem behaviors between
the two groups, but discovered an advantage in the social skills of siblings of
children with disabilities.
“For families to know that there are positive aspects to having a member with a
disability gives them a different perspective,” said researcher Elaine
Marshall, who is also dean of BYU’s nursing college. “In that respect, the
study’s findings almost become therapeutic.”
Janet A. Deatrick, an associate professor of nursing at the University of
Pennsylvania’s School of Nursing, said she is excited about the study.
“This is very important work that sheds light on families who have children with
a disability,” said Deatrick, who serves as co-director of Penn’s International
Center of Research for Women, Children and Families. “The study’s theoretical
framework, data analysis and interpretation are sound and enable clinicians and
researchers to understand the child as well as the family unit.”
The BYU researchers acknowledge that the study is partially limited because of
the sample on which the findings are based -- mostly white, two-parent,
middle-class families in Utah. Future research will try to determine why the
siblings of children with disabilities may demonstrate greater social skills.
In the meantime, BYU researchers are pleased their findings may offer hope to
people in less-than-perfect situations. Tina Taylor Dyches, a BYU professor of
counseling psychology and special education, who has worked with the families
of children with disabilities, is optimistic.
“It’s a different world today -- these families don’t ignore the negative
aspects of raising a child with disabilities, but more and more they are
looking for the positives,” said Dyches. “Before, they would ask one another,
‘How bad is it for you?’ Now, it’s, ‘What works for you?’”
Funding for the research was provided by BYU’s Family Studies Center and College
of Nursing and the Iota Iota chapter of Sigma Theta Tau International, a
professional organization for nurses.
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